Tim Hollenback, FSHD Radio host #GivingTuesday is a global generosity movement unleashing the power of people and organizations to transform their communities and the world. On Tuesday, November 29th, we will celebrate with an all-day Radiothon event via Facebook Live! FSHD Radio host, Tim Hollenback, will host guests non-stop from 11am-8pm Eastern/8am-5pm Pacific on Facebook@FSHDSociety.... Read More »
8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT Our topic this month: How do we decide when/if we need outside help either part time or live-in? It's a big step and not everyone in the family be on the same page. Are you approaching this decision point or in... Read More »
North Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of every month for a virtual chapter meeting. This will be our time to come together - where Connections, Hope, Healing, and Awareness happen on a consistent basis! At meeting time, please click this link to join. Hope to see you... Read More »
Philadelphia Chapter Meeting Saturday, Dec. 3rd, 2022 10am – 12pm ET Wissahickon Valley Public Library, 650 Skippack Pike, Blue Bell PA 19422 (Zoom line for those who need to call in): https://us02web.zoom.us/j/87939719109?pwd=TkJIWCt0RWtTWVU4cGtRNmxPcHlsZz09 We hope you will join us for the next meeting of the Greater Philadelphia Chapter! In our September meeting, there was a lot... Read More »
As 2022 comes close to an end, we want to celebrate this amazingly hopeful year with YOU! Please join us for some fun! WHEN: Saturday, December 3th, 2022 12pm – 2pm WHERE: Napoli's Restaurant - 2865 McDermott Rd. #235 Plano, TX 75025 WHO: YOU and your family, and all of our friends who are travelling the FSHD journey... Read More »
Please join us for appetizers and drinks! WHEN: Sunday December 4th, 2022 4pm – 6pm WHERE: Brothers Bar & Grill – 7407 Park Meadows Drive, Lone Tree CO 80129 WHO: YOU and your family, and all of our friends who are travelling the FSHD journey WHAT: While we catchup with one another and enjoy food and beverages, we’ll get... Read More »
North Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together - where Connections, Hope, Healing, and Awareness happen on a consistent basis! Hope to see you there! At meeting time, please click this link to... Read More »
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we'll be talking about "mattering," feeling valued as a woman, while living with the challenges of FSHD. We will also discuss depression, the potential high prevalence in individuals with chronic diseases -identifying signs and symptoms,... Read More »
12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT “FSHD is always attacking me… it never takes a day off. I practice qigong and kung fu daily. It’s my way to fight back.” -FH In the December “Feeling Fit” sessions, Frank Hanley will introduce several qigong exercises to... Read More »
As 2022 comes close to an end, we want to celebrate this amazingly hopeful year with YOU! Please join us for coffe and treats at a casual end-of-year get together! WHEN: Saturday December 10th, 2022 at 11am WHERE: Starbucks - 43 Milner Ave. Unit 2, Scarborough, ON M1S 3P6 WHO: You and your family, and... Read More »
Please join us for a Chapter Meeting and Holiday Party! Light refreshments and beverages will be provided. Researchers from the Avidity Team will offer tours of their laboratories, where the team is actively working on advancing treatment options for the FSHD community. If you would like to... Read More »
5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, you're invited to come dressed in Zoom-worthy holiday apparel, with favorite seasonal libations in hand! The Wellness Hour is open to everyone in the FSHD community. We'll have an open-ended conversation about how group members would like to... Read More »
Tuesday, December 13th Join us for the last FSHD Radio Show of 2022! For this special episode, join Tim and FSHD Society's CEO, Mark Stone as they discuss all that has happened in the FSHD community this past year. Mark will be sharing exciting updates that have happened in FSHD research and development in 2022,... Read More »
1:00 pm ET | noon CT | 11:00 am MT | 10:00 am PT | 18:00 GMT | 19:00 CET Everyone in the FSHD world has a role to play in getting our community to be "trial ready." The FSHD Society's website is your portal to trial readiness. Many of you may not realize the... Read More »
12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT In the December “Feeling Fit” sessions, Frank Hanley will introduce several qigong exercises to help strengthen the immune system and improve qi flow. These exercises build on the abdominal breathing exercises that Frank introduced in September, and reviewed during... Read More »
8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other care partners (the term we... Read More »
North Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of every month for a virtual chapter meeting. This will be our time to come together - where Connections, Hope, Healing, and Awareness happen on a consistent basis! At meeting time, please click this link to join. Hope to see you... Read More »
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