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We know that patients are the experts when it comes to understanding the impacts of FSHD on their health and well-being. That’s why when we saw many discussions on social… Read More »
Bowel and urinary issues in FSHD
About ankle-foot orthoses (AFOs)
Did you know we have an active group of international FSHD advocacy leaders, the World FSHD Alliance? We meet every three months to discuss global strategies. The members bring… Read More »
A delicate matter for female travelers with FSHD
Tips and tricks for managing urinary incontinence Editor’s note: This is a summary of the May Women on Wellness Zoom meeting. The members met to discuss their concerns and solutions… Read More »
Pain management in FSHD
The science and psychology of managing chronic pain Chronic pain is one of the more difficult aspects of living with FSHD, and also one of the most challenging to… Read More »
Shoulder dyskinesia in FSHD
Our FSHD University webinar on January 27, 2022, was a revelation! We learned that the muscle weakness that causes scapular winging can lead to maladaptive, compensatory movements which themselves can result… Read More »