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Home / Blog
AvidityBiosciences

Promising findings from Avidity’s myotonic dystrophy trial

December 14, 2022 Pinned Post Leave a Comment

A major breakthrough for the field of RNA therapeutics Avidity Biosciences announced today that its investigational treatment for myotonic dystrophy type 1 (DM1), called AOC 1001, can be delivered into… Read More »

Filed Under: FSHD Research

Springboards to the future

December 12, 2022 Pinned Post Leave a Comment

Everything we do propels us faster toward treatments and a cure We often speak of “filling potholes” and “overcoming obstacles” toward treatments and cures, but what the FSHD Society has… Read More »

Filed Under: FSHD Research, Journey to a Cure

Feeling Fit with low-impact seated exercises

December 13, 2022 Pinned Post Leave a Comment

Disclaimer: Not every exercise is appropriate or safe for every individual, so please use your best judgement and consult your health care provider. Priscilla Sharun is a fitness enthusiast and… Read More »

Filed Under: Living with FSHD, PT and Exercise

Feeling Fit: Exercises for the neck and shoulders

December 8, 2022 Pinned Post Leave a Comment

Disclaimer: Not every exercise is appropriate or safe for every individual, so please use your best judgement and consult your health care provider. If anything hurts, stop! In the November… Read More »

Filed Under: General, Living with FSHD, PT and Exercise

Using our leverage

December 5, 2022 Pinned Post Leave a Comment

A few years ago, we told our donors that a gift to the FSHD Society “is one of the most powerful investments you will ever make to advance medical research.”… Read More »

Filed Under: FSHD Research, Journey to a Cure

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